Recently I was contacted by the Bone Marrow Registry stating that I was a match for a patient. This caught me off guard as I signed up with the registry in 1998, while living in Arizona and in college. I think I went to give blood one day and they asked if I wanted to be on the list, I said yes, they took a swab of my mouth and that was it, very simple. After the first call to see if I was willing to move forward, which I agreed to, they set up a call for a health history review. That is now completed and tomorrow I go to get my blood drawn to run more tests to see how good of a match I am for the patient. The only information that I will ever know about the patient until a year after transplant is that he is a 63 yr old male with myelodysplastic syndrome. If I am a good match the donation could take place in the next 2 months. I am of course nervous of the process and have tried to research it the best that I can. There are 2 donation methods - harvesting bone marrow from my hi...
Mickey is a very loved mouse in our house. Liam absolutely can't get enough of Mickey Mouse Clubhouse on Disney. When he wakes up in the morning he comes straight to my room, snuggles in between Jared and I and turns on the tv for his cartoon. He sits there with his arms behind his head and legs outstretched. He is so darn cute.
So the other day I decided to buy him a stuffed Mickey. He was so surprised and loved it.
Checking him out. Mickey now has his own corner in Liam's crib. He likes his 'pets' in specific places.
Also, guess who is potty training????
The only kiddo I have left in diapers - woot woot!!! He has started this all on his own and so I'm optimistically hoping for December to be down to pull ups at night. Liam won't speak to tell us he has to go he just pats himself and points to the bathroom - whatever works right!
And here is our very first tomato from our tiny 1 plant garden.......
We have a few more and hope they will ...
This week is EB awareness week! EB stand for Epidermolysis Bullosa. It is a rare, genetic skin disease that involves the connective tissues of your skin. The slightest friction to the skin can cause severe blistering. The EB kids are referred to as 'Butterfly children' because their skin is so fragile. To learn more go to http://www.debra.org/ . I came across this disease through a blog about little Jonah. You can follow Jonah by clicking on his picture to the right. I have since come across several EB kids that I follow on a regular basis. EB is a horrible, painful disease. This week I will be running in a 5K race in support of EB. A few of my friends from work and myself made shirts that have the kids we follow on the back. Unfortunately shortly after the shirt was made little sweet Bella passed away. She was at the University of Minnesota for a clinical trial for an EB bone marrow transplant. I think she was patient #12. So far this is the only hope these kids have. I miss B...
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