This Friday I will have the pleasure of meeting Bella's parents and sister Ali; and little Jonah and his mom and dad. Their is an EB gathering in Winston Salem, NC and I feel very blessed to be able to go. These children are beautiful and have amazing families!!!! They have brought a great appreciation to me of the simple things in life and have helped me to put a lot of things into perspective that wouldn't be otherwise. Please help support research to find a cure for EB.